iTakeControl Privacy Policy

iTakeControl, LLC Privacy Policy 

We at iTakeControl, LLCthank you for using the iTakeContolmobile phone application (“Study App”) in connection with Stealth BioTherapeuticsInc.’s(the “Study Sponsor”) LHONclinical study (“the Study”).

iTakeControl, LLCis committed to advancing user experience, disease management and research as well asthe understanding of various health conditionsutilizing their study apps. This Study App has been configuredfor use in connection with the Study

This Privacy Policyexplainswhat informationwill becollected from those who registerto use the Study App,and how that information will be usedin connection with a user’s utilizationof the Study App.


You will be asked to provide certain information related to You ("Personal Information"). Personal Information includes, without limitation:

  1. "Contact Data": personally identifiable information such as email address and password.
  2. "Video Data": video data collected utilizing the Study App.
  3. “Other User Generated Information”: Information provided by You via free-text fields such as Study related information. 

iTakeControl, LLChas implemented and maintains reasonable security procedures and practices designed to protect against the unauthorized access, use, modification, destruction or disclosure of your Personal Information. However, despite these efforts, no security measuresare perfect or impenetrable and no method of data transmission can be guaranteed against any interception or other type of misuse.


Traffic Data.  The Study Appautomatically gathers information of the sort that browsers automatically make available, including: (i) IP addresses; (ii) domain servers; (iii) types of computers accessing the Website; and (iv) types of Web browsers accessing the Website (collectively "Traffic Data"). Traffic Data is anonymous information that does not personally identify you.

Cookies.A "Cookie" is a string of information that a Website stores on a user’s computer, and that the user's browser provides to the Website each time the user submits a query to the Website. The purpose of a Cookie is to identify the user as a unique user of the Website.The Study Appuses Cookies to customize your experience on the Website to your interests, to track site, application and service usage, to ensure that youdo not see the same advertisements or informational messages repeatedly, and to store your password so youdo not have to re-enter it each time youvisit the Website. In addition, the Study Appmay use Cookies, and other methods, to store and retrieve data from your Web browser


You should expect that of thePersonal Information andOtherInformationcollected by the Study App (except for “Restricted Data”) may be shared with the Study Sponsorandthird parties or agents of the Study Sponsor. Every effort will be made to protect your privacy. iTakeControl, LLCdiscloses Personal Information when required to do so by law, or in response to a subpoena or court order, or when iTakeControl, LLCbelieves in its sole discretion that disclosure is reasonably necessary to protect the property or rights of iTakeControl, LLC, third-parties or the public at large.

Sharing of Personal Information

Some of the Personal Information will not be shared with the Study Sponsor (“Restricted Data”). The type of Restricted Data constitutes:

  • Email Address
  • Password

Video data collected utilizing the Study App will be shared with the Study Sponsor andthird parties or agents of the Study Sponsor, in anonymous form for statistical analysis, research, demographic profiling and other purposes per the Study Protocol and Informed Consent.

Any information youpost may be available and accessible to third parties authorized by the Study Sponsor. You should exercise caution when deciding to disclose your Information, and youagree to assume all responsibility for doing so.

Sharing of Information Automatically Collected

iTakeControl, LLC uses third-parties for usage analytics for the Website and Applications and may share anonymized or aggregated information with them.The collection of this information by third-parties is subject to such third-parties’ privacy policies.


You may receive periodic notification emailsor mobile alert communications from the Study App, such as Study activityreminders, or other information regarding Study activities or the Study. You may opt out of receivingsuch notifications, depending on the Study Sponsor’s requirements.


  • You will not access to video data collected utilizing the Study App
  • You will not be able to access or correct your Personal Data once it is inputted into the Study App
  • You will not have access to your other Information collected in the course of the Study


TakeControl, LLCreserves the right to update, change or modify this Privacy Policy. Any material changes to this Policy will be posted on the Website and/or Applications (or youmay be notified by email or other notification), and will indicate when such changes will become effective.


Other than video data collected with the Study App, iTakeControl, LLC doesnot knowingly collect any Personal Information ofanyone under the age of 18. If iTakeControl, LLC is made awarethatsuch information has beencollected, iTakeControl, LLCwill promptly delete such information from its database.


You are free to stop using the Study App or to withdraw from the Study at any time. If youchoose to withdraw from the Study or deactivate your account or remove the Study App from your phone, then youwill no longer have access to iTakeControl Applications and iTakeControl will no longer collect Personal Information from you. However, your data collected prior to withdrawal or deactivation can still be used for all permitted purposes.


Effective Date: January 1, 2018